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assessing health and development after 2 years
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2006 Cohort

Status

Completed

Results

2006 Cohort

Extremely low birth weight infants (401-1000 grams or 22 weeks 0 days to 27 weeks 6 days gestational age), born during 2006 and who survived discharge were tracked and evaluated between 18 and 24 months corrected age at participating Network centers. Thirty-one centers actively participated in this year's project. One thousand six hundred and forty-eight infants survived and were eligible for follow-up. Of those infants, 820 received health and neurodevelopmental status evaluations. Twenty-nine percent of these evaluated infants were severely growth retarded (< 3rd percentile body size) and 13.8% had microcephaly (< 3rd percentile head size). Thirty-six percent of the infants were rehospitalized and 25% required rehospitalization for a surgical procedure. Overall, 20.5% had severe disability defined as having one of the following: bilateral blindness (.4%), hearing impairment requiring amplification (1.5%), inability to walk with support (4.1%), cerebral palsy (8.1%) or BSID II MDI index score < 70 (12.5%), BSID II PDI index score < 70 (12.7%), BSID III Cognitive < 70 (3.6%), BSID III Language < 70 (8.6%), or BSID III Motor < 70 (5.1%).

2002-2006 Cohort

Extremely low birth weight infants (401-1000 g) born between 2002-2006 who survived discharge home are being tracked and evaluated between 18 and 24 months corrected age at participating Network Centers. Thirty-one centers actively participated. Data completed for the 2006 Cohort year was combined with data for the completed 2002, 2003, 2004 and 2005 cohorts and analyzed as a five year cohort. Seven thousand one hundred and seven infants survived and were eligible for follow-up. Of those infants, 3894 received health and neurodevelopmental status evaluations. Twenty-nine percent of these evaluated infants were severely growth retarded (< 3rd percentile body size) and 13% had microcephaly (< 3rd percentile head size). Thirty-seven percent of the infants were rehospitalized and 26% required rehospitalization for a surgical procedure. Overall, 28.4% had severe disability defined as having one of the following: bilateral blindness (.75%), hearing impairment requiring amplification (1.6%), inability to walk with support (4.2%),cerebral palsy (7.7%), or BSID II MDI index score < 70 (22%), BSID II PDI index score < 70 (21%), BSID III Cognitive < 70 (3.9%), BSID III Language < 70 (9%), or BSID III Motor < 70 (5.9%).

In addition we are also using a parental interview and questionnaire. This will attempt to correlate parental perception of infant's status with the information gained from medical evaluation.

Publications and Presentations

None

Disclosure

No information to disclose


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