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assessing health and development after 2 years

2005 Cohort and 2001-2005 Cohort

Status

Completed

Results

2005 Cohort

Extremely low birth weight infants (401-1000 grams or 22 weeks 0 days to 27 weeks 6 days gestational age), born during 2005 and who survived discharge were tracked and evaluated between 18 and 24 months corrected age at participating Network centers. Thirty-four centers actively participated in this year's project. One thousand seven hundred and twenty-nine infants survived and were eligible for follow-up. Of those infants, 873 received health and neurodevelopmental status evaluations. Twenty-seven percent of these evaluated infants were severely growth retarded (< 3rd percentile body size) and 13% had microcephaly (< 3rd percentile head size). Thirty-four percent of the infants were rehospitalized and 24% required rehospitalization for a surgical procedure. Overall, 24.6% had severe disability defined as having one of the following: bilateral blindness (.8%), hearing impairment requiring amplification (1.8%), inability to walk with support (4.4%), cerebral palsy (7.3%), or Bayley mental development index score < 70 (21%).

2001-2005 Cohort

Extremely low birth weight infants (401-1000 g) born between 2001-2005 who survived discharge home are being tracked and evaluated between 18 and 24 months corrected age at participating Network Centers. Thirty-four centers actively participated. Data completed for the 2005 Cohort year was combined with data for the completed 2001, 2002, 2003 and 2004 cohorts and analyzed as a five year cohort. Six thousand six hundred and thirty-six infants survived and were eligible for follow-up. Of those infants, 3745 received health and neurodevelopmental status evaluations. Thirty percent of these evaluated infants were severely growth retarded (< 3rd percentile body size) and 13% had microcephaly (< 3rd percentile head size). Thirty-seven percent of the infants were rehospitalized and 27% required rehospitalization for a surgical procedure. Overall, 31.5% had severe disability defined as having one of the following: bilateral blindness (.9%), hearing impairment requiring amplification (1.6%), inability to walk with support (4%), cerebral palsy (7.5%), or Bayley mental development index score < 70 (23%).

In addition we are also using a parental interview and questionnaire. This will attempt to correlate parental perception of infant's status with the information gained from medical evaluation.

Publications and Presentations

None

Disclosure

No information to disclose


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