2004 Cohort and 2000-2004 Cohort
Status
Completed
Results
2004 Cohort
Extremely low birth weight infants (401-1000g) born during 2004 and who survived discharge were tracked
and evaluated between 18 and 24 months corrected age at participating Network centers.
Thirty-one centers actively participated in this year's project. One thousand three hundred and
ten infants survived and were eligible for follow-up. Of those infants, 773 received health and
neurodevelopmental status evaluations. Thirty percent of these evaluated infants were severely growth
retarded (< 3rd percentile body size) and 16% had microcephaly (< 3rd percentile head size). Thirty-five percent of
the infants were rehospitalized and 27% required rehospitalization for a surgical procedure. Overall, 31.1%
had severe disability defined as having one of the following: bilateral blindness (.8%), hearing impairment
requiring amplification (1.3%), inability to walk with support (4.8%), cerebral palsy (8%), or Bayley mental
development index score < 70 (24.7%).
2000-2004 Cohort
Extremely low birth weight infants (401-1000 g) born between 2000-2004 who survived discharge home are
being tracked and evaluated between 18 and 24 months corrected age at participating Network Centers.
Thirty-four centers actively participated. Data completed for the 2004 Cohort year was combined with data
for the completed 2000, 2001, 2002 and 2003 cohorts and analyzed as a five year cohort. Four thousand
seven hundred and fifty one infants survived and were eligible for follow-up. Of those infants, 3563
received health and neurodevelopmental status evaluations. Thirty two percent of these evaluated infants were
severely growth retarded (< 3rd percentile body size) and 13% had microcephaly (< 3rd percentile head size).
Forty two percent of the infants were rehospitalized and 29% required rehospitalization for a surgical procedure.
Overall, 34% had severe disability defined as having one of the following: bilateral blindness (1%),
hearing impairment requiring amplification (2%), inability to walk with support (4.2%), cerebral palsy (7.6%),
or Bayley mental development index score < 70 (24%).
In addition we are also using a parental interview and questionnaire.
This will attempt to correlate parental perception of infant's status with the
information gained from medical evaluation.
Publications and Presentations
None
Disclosure
No information to disclose